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Multiple Sclerosis Multiple Sclerosis Basics

Advice From Health Care Professionals Living With Multiple Sclerosis


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Summary & Participants

Medical professionals who live with MS are especially able to help other patients deal with lifestyle challenges. Two nurses and a physical therapist offer advice.

Medically Reviewed On: July 14, 2008

Webcast Transcript


FAITH REILLY, RN: When I talk to someone with MS, one of the first things I do is tell them that I have MS, because I've found that it gives me more credibility when I talk to them. They know that I have walked in their shoes and I've experienced the kinds of things that they're trying to describe or talk about. So they trust me in a very, very short time.

ANNOUNCER: Faith Reilly is a registered nurse who was diagnosed with multiple sclerosis in 1995. Her conversations with patients often cover the pain and unusual sensations that are commonly experienced by people with MS.

FAITH REILLY, RN: My personal experience is that I have something called "heebie-jeebies." That's the only way I can describe it. It's this torturous kind of tickling sensation that you feel and you just want to jump out of your skin.

JANET CLARKSON, RN: Pain can be a whole vast rainbow of symptoms. It can be a zinging feeling, an itching feeling, a feeling like an electric shock.

ANNOUNCER: Janet Clarkson also is a registered nurse with MS. She too uses her firsthand experience to help patients understand MS, and to better cope with it.

JANET CLARKSON, RN: These are all symptoms that can be the electrical misfiring, and your brain not interpreting what that is. And it's hard sometimes for patients to actually explain it to the doctor. I'll tell them, "Get a journal. When you have these symptoms write then down. Try to put a word to it, so that the doctor can understand what it is that you're feeling."

ANNOUNCER: There are many options available to help manage painful symptoms. Medication is sometimes helpful. But it's especially important to describe sensations accurately, so health care providers can identify the treatment options that will work best in individual cases.

JANET CLARKSON, RN: Fatigue was probably one of my biggest symptoms. That was one of the first things I presented with. I call it an MS wall. I can be going along having a wonderful day and it just hits me. The wall just comes up. I can't stay awake. I just want to take a nap and lay down.

ANNOUNCER: Prescription medication can help. But so can some changes in daily routine.

JANET CLARKSON, RN: So what I do is power napping. If I'm working an eight hour day, maybe one or two hours into my day I put my head down on my desk, or I go to my car and lay down. It really sort of regenerates me so I can go on with my day.

FAITH REILLY, RN: Energy conservation. And that's a pretty broad term meaning a lot of different things. But it means paying attention to what you're doing and cutting out of your life those things that you don't have to waste your energy on.

ANNOUNCER: Tracy Halmos is a physical therapist with MS. She helps many patients develop techniques to help with ambulatory problems.

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